Cherokee Nation Cancer Registry
Cancer is a leading cause of illness and death in the Cherokee Nation of Oklahoma, which is located across fourteen counties in Northeastern Oklahoma. To address cancer-related issues and concerns, Cherokee Nation Tribal Council and the State of Oklahoma designated the Cherokee Nation Cancer Registry (CNCR) to collect cancer data for American Indian and Alaska Native (AI/AN) people throughout the tribal jurisdiction in Northeastern Oklahoma. The primary purpose of the CNCR, which is supported by the NCI’s Surveillance, Epidemiology, and End Results (SEER) Program, is to collect complete, timely, and high-quality data for use in surveillance, decision-making, cancer control, research, policy development and outreach. The CNCR works with Oklahoma State Cancer Registry, Indian Health Service, and the New Mexico Tumor Registry to improve data quality and completeness and improve race assignment for its cancer registry.
The CNCR, in collaboration with the University of Oklahoma Health Sciences Center and Stevenson Cancer Center, is working to create the Cherokee Nation Health Analytics Core (CNHAC), which will link CNCR data with clinical treatment and outcomes data from health facilities both inside and outside of Cherokee Nation Health Services. The development of CNHAC and the linkage project aims to build the capacity for Cherokee Nation to conduct comprehensive cancer research. Planned studies include: 1) a feasibility study to identify factors that influence adherence to standard of care for breast cancer treatment among AI/AN women in the Cherokee Nation Tribal Jurisdiction Service Area; and 2) a pilot study examining breast cancer patterns of care and outcomes by diabetes status and glycemic control.
The CNCR is also working with the Cherokee Breast and Cervical Early Detection Program to assess the impact of screening on stage of cancer diagnosis. Additionally, the CNCR is sharing its data with the CDC-funded Cherokee Comprehensive Cancer Control Program to address colorectal cancer in the Cherokee Nation.